GSD 3 Patient Registry
If you or your child has been diagnosed with GSD-III, please submit this short form.
To encourage pharmaceutical companies to further develop treatments for GSD-III, it is critical to have an accurate estimate of the prevalence of the disease world wide.
All information will be kept completely confidential and will not be shared with any group, organization or individual, without your permission. The purpose of the registry is simply to aggregate data to encourage research.
Please submit the form for EACH member of your household with a diagnosis of GSD-III.